Ainsley is one.
She turned one over a week ago, actually, and I haven't really had time to write about it. And yep, she's still in the hospital. I look back at April and wonder what we were thinking. How little we knew. How it's probably pretty good that we had no idea what was ahead of us because it would've been too overwhelming.
The day before her birthday she went on a portable vent. You know the old portable vent - the one that could technically be used at home but isn't a home vent because it is a portable vent? Yes. She did. Before you get all excited, it didn't go well. She went on Wednesday and was off by Sunday and then proceeded to be a big fat drama queen for the next week.
So anyway, she was on this portable vent for her party and she was working a bit hard to breathe and was sweaty. And that's all the bad stuff - she was also very adorable and smiled a lot and wanted her mommy a lot.
"I can't put my arrrrrmmmms down!" Ainsley in her pimped out wheelchair. It makes her arms stick out like the snowsuit kid in A Christmas Story. |
We managed to get one family picture and as per usual, my girls just LOVE being photographed:
I thought it was funny that the iVent was centered in the picture. Like part of the family... When I added this picture to Facebook, I tagged the iVent as Ainsley's Lungs. |
Whoo do you think ate 3 cupcakes when nobody was looking? If Youuu guessed Olivia you would be correct. |
Actually, whooever had the camera was looking. |
I don't care about decorations... but I'll still spend stupid amounts of money on them. |
Ainsley doesn't eat anything that doesn't go through her g-tube, but she was happy to stick her finger in a cupcake and smear it on her high chair.
And then Olivia the neat freak was happy to immediately come to her aid with a napkin. "Look, what a mess!"
Was she cleaning? Or trying to scam another cupcake? |
We had the party in the family center, and a bunch of Ainsley's hospital friends were able to come, along with a bunch of Ainsley's outside of the hospital friends.
At one point, the room was so full you couldn't move. Now THAT'S a party!! |
Ainsley got SO! MANY! PRESENTS! Jammies and toys and books and gift cards...people continue to be so nice to us. Ainsley managed to open a present or two...
PAPER?! Dis exactly what I wanted. |
I thought that it might be pretty sad. It wasn't though. It was a happy and fun day. Not that I'm asking for a repeat for birthday #2!!! But there's a point where you quit being bitter that your kid is missing out on the world and you just end up being glad she is here at all.
Happy first birthday to my Ainsley!! She is adorable, hilarious, snobby...perfection.
--
One Year Ago: Evelyn and Ainsley
Also One Year Ago: Evelyn Cecille
Also Also One Year Ago: In Which I Almost Get Someone Kicked Out of the NICU
29 comments:
Happy birthday Ainsley!!
Oh Jen. She is SO adorable. Quite the party girl and what a great birthday she had! Guess WHOOO loves little Miss Ainsley? All of us! Happy Birthday, gorgeous!!
I think you've got it right in enjoying what you have rather than wasting time about what might be.
Adorable cake! And glad y'all got to use the family center.
Remembering Evelyn with y'all as well. Our surviving twin just had his first birthday on the 23rd and definitely adds an additional depth to the day. Miss ya, hog baby.
Happy Birthday to your sweet girl! Glad to see everyone had a great day! (and Olivia got away with sneaking 3 cupcakes :)
Happy Birthday Ainsley, looks like a day filled with incredible love & support! Olivia is hilarious with her cupcake scamming & neat freakness. Glad you were able to enjoy the day together surrounded by those who love you guys. So beautifully written, thankfulness that Ainsley is here & celebrating life with her loving family, regardless of where she may currently be residing.
Happy Birthday, Ainsley, sweetheart!
Love, love, love the pimped out w/c. Love. The pink and green? Perfect! And your girls are just ridiculously adorable. Glad you were able to celebrate with those in and out of the hospital...will be pulling for those lungs to do their thing soon.
Happy birthday, Ainsley! It looks like it was a great party!
Happy Birthday Ainsley! You look fabulous! :)
Happy Birthday to your little Drama Princess.
Happy birthday, Ainsley!
Happy birthday, Ainsley!
Happy birthday, Ainsley!
HAPPY BIRTHDAY!
"But there's a point where you quit being bitter that your kid is missing out on the world and you just end up being glad she is here at all."
I don't think you could have said it better.
Happy Birthday Ainsley!
Thinking of you and sending you good lung vibes!
So precious! Happy Birthday Ainsley!
Happy birthday Ainsley! Remembering sweet Evelyn as well! xo
Happy Birthday to Ainsley!!
Your sentence "But there's a point where you..." sent chills down my spine. I love it, and it's so true.
Happy Birthday, Ainsley! Stop being dramatic with the portable/home vent though.
Thinking of Evelyn...
Ummm your kids are so freaking cute. Thank you for this smile today. Thinking of Evelyn and wishing them both happy birthaday.
Congratulations to all, looks like a lovely party. Happy first birthday Ainsley. Looking at the photo in the highchair I can suddenly see a resemblance between Ainsley and Olivia, and it looks like Ainsley is blonde too, which I hadn't noticed before. She looks beautiful and I love the party skirt.x
Happy happy birthday sweet girl, I'm so glad you're here! :)
B is reading blogs with me... ish. He saw a picture of A and said "who's that? Is she baby Jude's friend?" I said, well kinda. "Ok! She's coming to my birfday party!!" So there you have it, Miss A, an official invitation. ;)
Happy birthday Ainsley!
Again, you with the stinkin' good attitude. Way to go, mama!
And I would like 3 cupcakes too. Please and thank you. Or the whole freakin' cake...yum!
Happy birthday Ainsley!
Happy Birthday Ainsley and thinking of Evelyn.
I love this post. For the last two paragraphs alone. What a nice party and cake!
Happy birthday funny girl. Thinking of Evelyn as well.
Happy Birthday, Ainsley! I also love the picture of Olivia on someone's lap --- look at that great circular hair swoop! The cake/cupcakes were beautiful!
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